early withdrawal of 401k, planning for early retirement.?

I just want to make sure I am thinking of this correctly.

My husband has a degenerative disease (cystic fibrosis), so this causes him to have a reduced lifespan.

I would like him to have a fun retirement time before he gets real sick, I'm thinking a likely time frame would be like he retiring in 21 years when he is 45 with a likely lifespan of 50-55 years.

I was thinking of saving this retirement money outside of a 401k/ IRA to avoid the 10 percent withdrawal fee as I we wouldn't want to wait for him to get real sick and disabled before stopping work and withdrawing the money saved for this.

But I was reading and just realized that even though we would have to pay the 10% for withdrawing early, we would still get the tax benefits and our taxes are way way more than 10%.

Is this correct, that we don't loose the tax benefits even if we withdraw the retirement money early, just loose the 10%?

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